Tuesday, July 22, 2008

Trying to go on Growth Hormone, part 2 (Golden Oldies)

Continuation of Trying to go on Growth Hormone (Golden Oldies)

Nov 5, 2004

After all this time, to get so close to getting GH, my insurance company rejected me.

I am not approved or authorized and I don't meet medical criteria necessary and a whole lot of other stuff which indicates that they don't care a bit, even though they call themselves "CareFirst".

So some insurance idiot thinks he knows more about the testing than a Growth Hormone Specialist. Sheesh!

Of course, I got this too late to talk to my case worker at Genentech, but I left her a message on her answering machine. I don't know if she'll understand it, since I was crying so hard.

I hate my life!

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Nov 22, 2004

I haven't got the stuff yet, and I'm already worried about traveling with it.

I know that the type that my insurance will pay for (Norditropin) doesn't have any preservatives so it can only be unrefrigerated for an hour, then it becomes trash - however much is left in the cartridge.

Those little cooler things with the bricks to freeze that they provide for you - how long do they actually keep the stuff cold?

For car trips, has anyone bought one of those refrigerators that plug into the cigarette lighter and, if so, is there any type that you recommend?

How hard is it to get a refrigerator in a hotel room? I know that there was none in Nashville, unless you asked specifically. If you have one of those car cooler things, can you get it so it plugs into a regular outlet, too?

If flying, will the plane staff put it in one of the plane coolers during the flight?

The things we worry about!

Now I just have to get my hands on the stuff LOL

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Mar 4 2005, 12:22 PM

From what I've read, many people here have lost weight on GH. I've gained about 10 pounds since September sad.gif I've been on the GH since Dec. 6, about half that time.

Very little, if any, extra energy. AARRGGH!

Has anyone else gained on GH instead of losing?

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Apr 13 2006 (The night before my kidney cancer diagnosis)

I'm at the hotel, back from my 6-month appointment at Johns Hopkins. When they ran the arginine test for growth hormone over a year ago, they did it wrong sad.gif Not just me, but everyone for a couple years.

This means that I've been on the wrong amount of GH for the whole time. I have to go off for 2 weeks to get it out of my system, be retested the right way and start again.

The way the test instructions are worded, the infusion lab misinterpreted. My endo was doing some GH research, writing a paper and came across this "little" mistake.

So, no wonder I'm not feeling any better like most everyone on here does after starting GH.

Sheesh!