Showing posts with label blogs. Show all posts
Showing posts with label blogs. Show all posts
Tuesday, March 19, 2013
For Cushing's Awareness Challenge Bloggers
Cushie bloggers - who would like to share your post on April 8 (Cushing's Awareness Day) with our friends at Adrenal Insufficiency United, on their blog?
Also, they are interested in sharing others of our posts from April. Please let me know if I have your permission to share your blog post(s) with them. I won't without your permission.
Thanks!
Friday, March 15, 2013
Cushing's Awareness Blogging Challenge 2013
Do you blog? Want to get started?
Since April 8 is Cushing's Awareness Day, several people got their heads together to create the Second Annual Cushing's Awareness Blogging Challenge.
All you have to do is blog about something Cushing's related for the 30 days of April.
Robin designed this year's version of our "official logo" to put on your blogs.
If your blog wants you to upload an image from your desktop, right-click on the image above and choose "save-as". Remember where you saved it to!
To link to the image with the yellow border, use this URL: http://www.cushings-help.com/images/challenge-2013b.jpg
To link to the image without a border, use this URL: http://www.cushings-help.com/images/challenge-2013nb.jpg
In all cases, the URL for the site is http://www.cushings-help.com
Please let me know the URL to your blog in the comments area of this post or and I will list it on CushieBloggers ( http://cushie-blogger.blogspot.com/ )
The more people who participate, the more the word will get out about Cushing's.
Suggested topics - or add your own!
In what ways have Cushing's made you a better person?
What have you learned about the medical community since you have become sick?
If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing's patients?
What would you tell the friends and family of another Cushing's patient in order to garner more emotional support for your friend?
Challenges with Cushing's? How have you overcome challenges? Stuff like that.
I have Cushing's Disease....(personal synopsis)
How I found out I have Cushing's
What is Cushing's Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)
My challenges with Cushing's
Overcoming challenges with Cushing's (could include any challenges)
If I could speak to an endocrinologist organization, I would tell them...
. What would I tell others trying to be diagnosed? What would I tell families of those who are sick with Cushing's?
Treatments I've gone through to try to be cured/treatments I may have to go through to be cured.
What will happen if I'm not cured?
I write about my health because...
10 Things I Couldn’t Live Without.
My Dream Day.
What I learned the hard way
Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)
Health Madlib Poem. Go to http://languageisavirus.com/cgi-bin/madlibs.pl and fill in the parts of speech and the site will generate a poem for you.
Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!
5 Challenges and 5 Small Victories.
The First Time I...
Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.
How much money have you spent on Cushing's, or, How did Cushing's impact your life financially?
Why do you think Cushing's may not be as rare as doctors believe?
What is your theory about what causes Cushing's?
How has Cushing's altered the trajectory of your life? What would you have done? Who would you have been?
What three things has Cushing's stolen from you? What do you miss the most? What can you do in your Cushing's life to still achieve any of those goals? What new goals did Cushing's bring to you?
How do you cope?
What do you do to improve your quality of life as you fight Cushing's?
Your thoughts...?
In what ways have Cushing's made you a better person?
What have you learned about the medical community since you have become sick?
If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing's patients?
What would you tell the friends and family of another Cushing's patient in order to garner more emotional support for your friend?
Challenges with Cushing's? How have you overcome challenges? Stuff like that.
I have Cushing's Disease....(personal synopsis)
How I found out I have Cushing's
What is Cushing's Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)
My challenges with Cushing's
Overcoming challenges with Cushing's (could include any challenges)
If I could speak to an endocrinologist organization, I would tell them...
. What would I tell others trying to be diagnosed? What would I tell families of those who are sick with Cushing's?
Treatments I've gone through to try to be cured/treatments I may have to go through to be cured.
What will happen if I'm not cured?
I write about my health because...
10 Things I Couldn’t Live Without.
My Dream Day.
What I learned the hard way
Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)
Health Madlib Poem. Go to http://languageisavirus.com/cgi-bin/madlibs.pl and fill in the parts of speech and the site will generate a poem for you.
Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!
5 Challenges and 5 Small Victories.
The First Time I...
Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.
How much money have you spent on Cushing's, or, How did Cushing's impact your life financially?
Why do you think Cushing's may not be as rare as doctors believe?
What is your theory about what causes Cushing's?
How has Cushing's altered the trajectory of your life? What would you have done? Who would you have been?
What three things has Cushing's stolen from you? What do you miss the most? What can you do in your Cushing's life to still achieve any of those goals? What new goals did Cushing's bring to you?
How do you cope?
What do you do to improve your quality of life as you fight Cushing's?
Your thoughts...?
Wednesday, May 16, 2012
A New Blogging Challenge
Attention bloggers! WEGO Health has found another writing challenge in honor of National Women's Health Week, The Fitness & Health Bloggers Conference (the same one that one of our Health Activists will be attending!) is hosting a week long blogger challenge in honor of National Women's Health Week. The theme for National Women's Health Week is "It's Your Time" National Women’s Health Week empowers women to make their health a top priority. It also encourages women to take the following steps to improve their physical and mental health and lower their risks of certain diseases
Saturday, March 31, 2012
It's HERE! The Cushing's Awareness Challenge
Enjoy following the posts of these outstandingly brave Cushies as they attempt to post a blog post each day for the month of April
Amber http://amber-mulnix.blogspot.com/
Christina http://christinapay.blogspot.com/Cristina (Portugese language) http://cristinagoncalves1973.blogspot.pt/Danielle http://lifewithcushings.blogspot.com/DawnGrace C http://adayinthelifeofatrainwreck.blogspot.com/Judy DKay http://cushiemama.blogspot.com Lisa DMalia KMary BMaryO http://www.cushie.info/blog/Melissa AMelissa SMissaf http://blogforacushiecure.blogspot.com/Molli http://livingwithstripes.blogspot.com/Nancy J http://cushielife.multiply.com/Rene B http://missdiagnosis-rene.blogspot.com/Robin S survivethejourney.blogspot.comSarah C http://sarahsstupiddisease.wordpress.com/Sharon SShermaineStanley LStephanie Y cushiesteph.blogspot.comTrishaVanessa http://www.blogger.com/profile/05094821916178382160
Enjoy!
Thursday, March 29, 2012
Cushing's Awareness Challenge Countdown...
Only 3 days (counting today) until the Cushing's Awareness Challenge begins. At night, when I'm supposed to be sleeping, ideas for posts keep swarming through my head. Sometimes, they form into fully-written posts. Then, when I wake up, the posts are gone.
I plan to follow the suggestions to some extent and have a few ideas of my own. Over the years, I've posted lots on several blogs but I don't know if I can get 30 days of Cushing's stuff together!
At the moment, there are 26 participants in this challenge and growing. Please follow their blogs. The list is here and is constantly updated as new URLs come in.
If you want to join us, its not too late. Directions and suggestions for posts can be found here: http://cushie-blogger.blogspot.com/2012/03/cushing-awareness-challenge.html
If you have ideas for what you'd like to read about (Cushing's related, of course), please feel free to put it in the comments area.
Tuesday, March 27, 2012
Cushing's Awareness Challenge
Do you blog? Want to get started?
Since April 8 is Cushing's Awareness Day, several people got their heads together to create this blogging challenge.
All you have to do is blog about something Cushing's related for the 30 days of April. Robin designed 3 versions of our "official logo" to put on your blogs.
Please note that these are thumbnails - the actual image is larger than shown here. Click on the images to view actual size.
If your blog wants you to upload an image from your desktop, right-click on the image above and choose "save-as". Remember where you saved it to!
In all cases, the URL for the site is http://www.cushings-help.com
[[posterous-content:pid___0]]Small. If your blog asks you to enter the URL, use this:
Medium. If your blog asks you to enter the URL, use this:
Large. If your blog asks you to enter the URL, use this:
Please let me know the URL to your blog and I will list it on CushieBloggers ( http://cushie-blogger.blogspot.com/ ) The more people who participate, the more the word will get out about Cushing's.
Suggested topics - or add your own!
- In what ways have Cushing's made you a better person?
- What have you learned about the medical community since you have become sick?
- If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing's patients?
- What would you tell the friends and family of another Cushing's patient in order to garner more emotional support for your friend? challenge with Cushing's? How have you overcome challenges? Stuff like that.
- I have Cushing's Disease....(personal synopsis)
- How I found out I have Cushing's
- What is Cushing's Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)
- My challenges with Cushing's
- Overcoming challenges with Cushing's (could include any challenges)
- If I could speak to an endocrinologist organization, I would tell them....
- What would I tell others trying to be diagnosed? What would I tell families of those who are sick with Cushing's?
- Treatments I've gone through to try to be cured/treatments I may have to go through to be cured.
- What will happen if I'm not cured?
- I write about my health because…
- 10 Things I Couldn’t Live Without.
- My Dream Day.
- What I learned the hard way
- Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)
- Health Madlib Poem. Go to : http://languageisavirus.com/cgi-bin/madlibs.pl and fill in the parts of speech and the site will generate a poem for you.
- The Things We Forget. Visit http://thingsweforget.blogspot.com/ and make your own version of a short memo reminder. Where would you post it?
- Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!
- 5 Challenges & 5 Small Victories.
- The First Time I…
- Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.
- How much money have you spent on cushing's, or, How did Cushing's impact your life financially?
- Why do you think Cushing's may not be as rare as doctors believe?
- What is your theory about what causes Cushing's?
- How has Cushing's altered the trajectory of your life? What would you have done? Who would you have been?
- What three things has Cushing's stolen from you? What do you miss the most? What can you do in your Cushing's life to still achieve any of those goals? What new goals did Cushing's bring to you?
- How do you cope?
- What do you do to improve your quality of life as you fight Cushing's?
- Your thoughts...?
Monday, March 26, 2012
Cushing's Awareness Challenge
Do you blog? Want to get started?
Since April 8 is Cushing's Awareness Day, several people got their heads together to create this blogging challenge.
All you have to do is blog about something Cushing's related for the 30 days of April. Robin designed 3 versions of our "official logo" to put on your blogs.
Please note that these are thumbnails - the actual image is larger than shown here. Click on the images to view actual size.
If your blog wants you to upload an image from your desktop, right-click on the image above and choose "save-as". Remember where you saved it to!
In all cases, the URL for the site is http://www.cushings-help.com
Small. If your blog asks you to enter the URL, use this:
Medium. If your blog asks you to enter the URL, use this:
Large. If your blog asks you to enter the URL, use this:
Please let me know the URL to your blog and I will list it on CushieBloggers ( http://cushie-blogger.blogspot.com/ ) The more people who participate, the more the word will get out about Cushing's.
Suggested topics - or add your own!
- In what ways have Cushing's made you a better person?
- What have you learned about the medical community since you have become sick?
- If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing's patients?
- What would you tell the friends and family of another Cushing's patient in order to garner more emotional support for your friend? challenge with Cushing's? How have you overcome challenges? Stuff like that.
- I have Cushing's Disease....(personal synopsis)
- How I found out I have Cushing's
- What is Cushing's Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)
- My challenges with Cushing's
- Overcoming challenges with Cushing's (could include any challenges)
- If I could speak to an endocrinologist organization, I would tell them....
- What would I tell others trying to be diagnosed? What would I tell families of those who are sick with Cushing's?
- Treatments I've gone through to try to be cured/treatments I may have to go through to be cured.
- What will happen if I'm not cured?
- I write about my health because…
- 10 Things I Couldn’t Live Without.
- My Dream Day.
- What I learned the hard way
- Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)
- Health Madlib Poem. Go to : http://languageisavirus.com/cgi-bin/madlibs.pl and fill in the parts of speech and the site will generate a poem for you.
- The Things We Forget. Visit http://thingsweforget.blogspot.com/ and make your own version of a short memo reminder. Where would you post it?
- Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!
- 5 Challenges & 5 Small Victories.
- The First Time I…
- Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.
- How much money have you spent on cushing's, or, How did Cushing's impact your life financially?
- Why do you think Cushing's may not be as rare as doctors believe?
- What is your theory about what causes Cushing's?
- How has Cushing's altered the trajectory of your life? What would you have done? Who would you have been?
- What three things has Cushing's stolen from you? What do you miss the most? What can you do in your Cushing's life to still achieve any of those goals? What new goals did Cushing's bring to you?
- How do you cope?
- What do you do to improve your quality of life as you fight Cushing's?
- Your thoughts...?
Wednesday, November 2, 2011
Cushing's News
Something new of interest to Cushies most every day. Please note that there is a current backlog of about three weeks for submitted bios to be added to the website.
November 2, 2011:
- New Comment has been added: Crystal's son, undiagnosed bio http://cushie.info
- Doctors Use Google For Health Information, Too, Survey Finds http://cushie.info
- Endoscopic endonasal compared with microscopic transsphenoidal and open transcranial resection of giant pituitary adenomas http://www.cushie.info
- The CushieWiki updated 11/2/2011. http://www.CushieWiki.com
- New Comment added: Gail M W, undiagnosed bio http://cushie.info
- Clinical trial: Effects of Hormone Stimulation on Brain Scans for Cushing's Disease http://cushings.posterous.com
- New FAQ Question added http://www.cushie.info
- Tweeting about Cushing's? Use this hashtag: #cushings
- Where Does My Donation Go? Spreadsheet https://docs.google.com/a/cushings-help.org
- Help Cushing's Help at No Cost to You http://www.cushie.info
- Comment has been added: Discussion/debate topics http://cushie.info
- Updated Upcoming Meetings (Updated 11/2/11) http://www.cushie.info
- Cushing's and Cancer Blog (Updated 10/27/11) http://www.cushingshelp.blogspot.com
- Cushing's Help on Posterous Blog (Updated 10/27/11) http://cushings.posterous.com
- The Cushing's Daily http://www.cushie.info
- Cushing's Podcasts on Posterous Blog (Updated 10/20/11) http://cushingspodcasts.posterous.com
- A New FAQ (Frequently Asked Questions) is being added. 109 questions answered so far. Last updated 10/28/11. http://cushie.info
- Addison's and Cushing's Help and Support RSS Feed. Last updated 11/2/11. http://www.cushingsonline.com
- New Male Only bio. http://cushie.info
- Our Locations (Updated 11/2/11) http://cushie.info
- Updated: Gail M W, pituitary bio http://www.cushie.info
- Kim, pituitary bio http://www.cushie.info
- Crystal's son, undiagnosed bio http://www.cushie.info
- Maureen, adrenal bio http://www.cushie.info
- Lou, undiagnosed bio http://www.cushie.info
- Carmen, undiagnosed bio http://www.cushie.info
- Maureen, adrenal bio http://www.cushie.info
Tuesday, September 20, 2011
Monday, June 20, 2011
Do You Blog About Your Health?
Tufts University Medical School: Patient Blogging Survey
INFORMED CONSENT FOR PARTICIPATION
Thank you for taking part in a Tufts University School of Medicine graduate research project to examine patient blogging. Purpose of the Study: The purpose of this study is to examine the use of patient blogs. What will be done: You will complete a survey, which will take 10-15 minutes to complete. The survey includes questions about your blogging history. We also will ask for some demographic information (e.g., age, marital status,education level) so that we can accurately describe the general traits of survey participants. Confidentiality: Your responses will be kept completely confidential. We will NOT know your IP address when you respond to the survey. We will ask you to include an e-mail address when you complete the survey so that we can enter you in the drawing for the gift certificate. However, your e-mail address will not be stored with data from your survey. You will be assigned a participant number, and only that number will appear with your survey responses. Benefits of this Survey: You will be contributing to knowledge about patient blogs. In addition, you will be entered in a drawing for one of two $25.00 Amazon.com gift certificates. After we have finished data collection, we will conduct the drawing. Winners will receive the gift certificate via e-mail. Risks or discomforts: No risks or discomforts are anticipated from taking part in this study. If you feel uncomfortable with a question, you can skip that question or withdraw from the study altogether. If you decide to quit at any time before you have finished the survey, your answers will NOT be recorded. Decision to quit at any time: Your participation is voluntary; you are free to withdraw your participation from this study at any time. If you do not want to continue, you can simply leave the survey site. If you do not click on the "done" button at the end of the survey, your answers and participation will not be recorded. You also may choose to skip any questions that you do not wish to answer. If you click on the “done” button at the end of the survey and enter your email address, you will be entered in the drawing. How the findings will be used: The results of the study will be used for scholarly purposes only. The results from the study will be presented in educational settings and at professional conferences, and the results might be published in a professional journal. Contact information: If you have concerns or questions about this study, you may contact the Principal Investigator, Dr. Libby Bradshaw, (617) 636-6946, Co-Investigator, Pamela Ressler, RN, MS-PREP candidate (pamela.ressler@tufts.edu), or faculty preceptor, Dr. Lisa Gualtieri (l.gualtieri@tufts.edu). If you have questions about your rights as a research study subject, call the Tufts Medical Center and Tufts University Health Sciences Institutional Review Board (IRB) at (617) 636-7512. The IRB is a group of doctors, nurses, and non-medical people who review human research studies for safety and protection of people who take part in the studies. Federal law requires the IRB to review and approve any research study involving humans. By beginning the survey, you acknowledge that you are at least 18 years old, have read this information, and agree to participate in this research, with the knowledge that you are free to withdraw your participation at any time without penalty.
Monday, May 23, 2011
The Cushing's Help Family of Sites
Also in the Cushings-Help family of websites
- The original site, founded in July, 2000. http://cushings-help.com
- http://www.cushings-support.com
- http://www.cushie.info
- Soon to be upgraded Cushing's Help Organization site
- The message boards, founded in September, 2000 http://cushings.invisionzone.com/index.php
- New Wiki http://www.cushiewiki.com
- A site to host images and files http://www.cushingsonline.com
- Cushing's Disease/Syndrome Knol
- http://www.addisons-help.com
- Addison's Disease Knol
- and various Cushing's/Adrenal blogs
Saturday, October 9, 2010
40 Days of Thankfulness: Day Zero
I have decided to try Facebook's 40 Days of Thankfulness and I'm going to post all 40 days here since I know that it will auto-post to Facebook and my blogs.
More info about this can be found at http://www.facebook.com/home.php?sk=group_131938326857520&ap=1#!/event.php?eid=151092964927873&index=1
Although I have had several problems in my life (and who hasn't?), I'm sure I can come up with at least 40 things I'm thankful for. So starting tomorrow, I'll be posting them here.
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