Thursday, November 28, 2013

Wednesday, November 20, 2013

Interview with Miriam K (Meeks089), Pituitary Success Story

Miriam writes in her bio:
"I suffered for eight long years with Cushings disease . I had surgery on August 1 , 2012 , I look like a different person , and act like a different person. I would love to share my journy . One that was an emotional roller coaster .
It was a long hellish journey .However I would not trade it for anything else in the world.
Although I suffered immensly, Cushings has made me who I am today. I have become strong from this disease. Although I suffered many symptoms, the emotional ones were by far the worst.
I would love to be interveiwed because I vowed when I was ill to help people when I got better.
I want to give people hope ."
MaryONote:  Miriam will be interviewed on BlogTalkRadio podcasts December 4, 2013.

Friday, November 8, 2013

Rare Disease Week

The House & Senate Congressional Calendars came out this week!


Congress is in session during Rare Disease Week – SaveTheDate!


Feb. 25th – Feb. 28th, 2013


4 Days of Rare Disease Events in Washington DC!


More info coming soon.