The other issue, as you already know, is [name removed]. I had such high hopes for getting her better this summer. Such high, high hopes! I have failed miserably at that. If anything she is worse. She is on a 1200 calorie diet (have you ever tried to starve a 13 year old? It ain't fun!) and is still gaining weight. Granted we took a break from that at camp, but still her original purple stretch marks (hallmark symptom of Cushing's Disease) are multiplying at a frightening rate. I fear at any moment she'll turn into a purple version of an Umpaloompa!
We are still testing and I know eventually we'll get to a point to where she can have surgery, but it's obviously not going to be this summer. I am so sad about that and mostly I am sad because she is. She doesn't feel good and she doesn't like how she looks. She can't fit into any clothes that I buy her. She is just too big around (also classic symptom of Cushings). Her face looks all swollen and she is just flat out depressed about it. I can't remember the last time she was with a friend. It was way, way before school was out. I don't really think she has a friend. Nobody calls or texts or contacts her and it hurts her feelings. She just thinks nobody wants to be with a fat, sick person. I try to point out that she doesn't contact them either, but she's not really listening to anything but what the image staring back from the mirror is telling her. I hate that because she is such a beautiful person. She should be having fun and being young. She can't ride her bike. She can't walk to take pictures. She can't swim. She just can't be a kid.
Saturday, July 19, 2008
Cushing's is everywhere online these days, Part 2
From a blog, Mama of a Whole Lotta Drama: