"...We are the orphans. We are the zebra's in a world of horses. The ones who have a rare disease many have never heard of. We have no famous speakers to bring life to our voices. We have no sports stars to put a face on Cushing's. We have no pink ribbons. We have no simple tests to tell us if we have it. If no one cures us, our lives will be shortened at best and ended at worst.
We are the sick who are forgotten. We are the ones our doctors dread to see. We are the zebra's mingled with the horses and no one sees our stripes. We are the untreated, the mistreated, and misdiagnosed. Our hooves pound like zebras and no one bothers to hear them..."
Thursday, November 6, 2008
from Herding Zebras: