Wednesday, January 7, 2009

Current Newsletter, January 7, 2009

Read this issue online

Robin (staticnrg) Does SO Much For Us...

Vote for Robin (staticnrg)...and for Cushing's Awareness.  Time to give back!

Please vote for Robin (staticnrg) in  The 2008 Medical Weblog Awards.

Choose her blog "Survive the Journey" at http://medgadget.com/2008bestpatient.html

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Addison's HelpA new blog  to promote Addison's awareness.  Find it at http://addisonshelp.blogspot.com/
This will contain news items and personal stories about Addison's Disease and other adrenal issues.
If you would like to add your story to this new blog, please contact MaryO

Also in this issue:

Happy New Year!

What's Happening at the Organization?

Cushie Bloggers

Upcoming Interviews

Upcoming Meetings

Podcasts

Cushing's on Facebook

Media - Coming up on TV

Want to Volunteer?

Upcoming Clinical Trial

Clinical Trial: Women With Pituitary Problems Wanted For A Testosterone Study

Clinical Trials in Cushing’s Disease

Help Keep The Cushing's Sites Going At No Charge

Endo News: Glands out of synch with body

Endo News: My Life With Cushing's Disease

Endo News: Painful anthology provides therapy for the soul

Endo News: Ask the Doctor at Saint John’s: Minimally Invasive Brain and Pituitary Tumor Surgery

Endo News: Studies on growth hormone release and cortisol with intravenous glucose loading

Endo News: The role of SOX proteins in normal pituitary development

Endo News: Personality in patients with pituitary adenomas is characterized by increased anxiety related traits: comparison of 70 acromegalic patients to patients with non-functioning pituitary adenomas and age- and gender matched controls

New and Updated Helpful Doctors

New and Updated Bios

New Bio January 5, 2009
Randy (burrman)
is from Portland, Maine. He is not yet diagnosed with Cushing's. He saw a news item on Fox News and he thinks his symptoms match Cushing's.

New Bio January 1, 2009
Dina (Dina)
is from Newington, Connecticut. She has recently been diagnosed with Cushing's Disease and plans to have her pituitary tumor removed in the summer.

New Bio December 29
turtledove (turtledove)
is from Hamilton, Ohio. She is not yet diagnosed with Cushing's but she has many symptoms.

New Bio December 28
April (April)
is from Jacksonville, Florida. She is not yet diagnosed with Cushing's but has a PCOS diagnosis.

New Bio December 23
imbolcgirl (imbolcgirl)
is from Ohio. She his not yet diagnosed with Cushing's but has many symptoms.

New Bio December 22
Margaret (Margaret)
is from SW, Virginia. She has recently been diagnosed with Cushing's Disease. She is scheduling an IPSS.

New Bio December 14
Lisann (lisann)
is from St. Louis, Missouri. She is not yet diagnosed with Cushing's but she is testing. She has an adenoma, is a long-time hydrocortisone user and has Graves Disease.

New Bio December 14
Leann
is from Bulger, Pennsylvania. Her son was recently diagnosed with Congenital Adrenal Hyperplasia (CAH). She suspects possible adrenal problems with her oldest daughter (age 19) and herself.

New Bio December 12
Natalie (Natalie)
is from Denton, Texas. She is not yet diagnosed with Cushing's but has a PCOS diagnosis. When she was younger her doctors were concerned that she had a pituitary tumor.