Tuesday, June 2, 2009

Cushing's Newsletter June 2, 2009

In This Issue

Welcome to the latest Cushing's Newsletter!

Cushie Bloggers

Upcoming Interviews

Upcoming Meetings

Upcoming Cushing's Book

Cushing's on Facebook and Twitter

Media: Free Online Book: Management Of Pituitary Tumors

Want to Volunteer?

Help Keep The Cushing's Sites Going

Endo News: Pituitary Tumors

Endo News: Neurosurgery Update ~ Minimally Invasive Brain Tumor Removal

Endo News: Bilateral Adrenalectomy for Refractory Cushing Disease: A Safe and Definitive Therapy

Endo News: Deletereous Effects of Glucocorticoid Replacement on Bone in Women after Long-Term Remission of Cushing's Syndrome

Endo News: Predisposing Factors for Adrenal Insufficiency

Endo News: Outcome of transsphenoidal surgery for Cushing's disease: A high remission rate in ACTH-secreting macroadenomas

Endo News: New institute will study rare diseases

Endo News: Hypercoagulable state in Cushing's syndrome: a systematic review.

Endo News: Pituitary-thyroid feedback in a patient with a sporadic activating TSH-R mutation: implication that thyroid-secreted factors other than thyroid hormones contribute to serum TSH levels.

Endo News: (Cushing's and Adrenal Cancer) Hope dies last

Share Your Cushing's Symptoms on a New Site

What can I do about my stretch marks?

New and Updated Helpful Doctors
Todd Darmondy, M.D. (Fort Lauderdale, FL)
Adam Maass, M.D. (Rogers, AR)
Andrew D. Scrogin, MD, (Macomb, MI)
updatedDaniel Kelly, MD (Santa Monica, CA)
Wisconsin (2 new doctors)


Leamington Spa, UK
Toronto, Canada
Melbourne, Victoria, Australia
Hamburg, Germany
Lucknow, India

New and Updated Helpful Doctors

New and Updated Bios
New Bio June 1, 2009
Jessa (Jessa)
is from Bathurst, St. John, Canada. She is not yet diagnosed with Cushing's but has many sumptoms. Her cortisol level is now at 4200. She is waiting for a catscan to check for a pituitary tumor.
New Bio May 31, 2009
Lory (Lor)
is from Minnesota. She was diagnosed with pituitary Cushing's in May of 2009. She had symptoms for two years.
New Bio May 29, 2009
Lynn (Lynn)
is from Bend (OR). Lynn had a left adrenalectomy in 2000. In 2004 Lynn had a Thyroidectomy due to tumor which was malignant on the biopsy, yet benign at surgery. In May 2009 she learned she had a 3mm anterior pituitary tumor. She is a patient of Dr Ted Friedman. Lynn will be a guest in a Live Interview in the Cushings Help Voice Chat / Podcast series.
Updated Bio May 29, 2009
Cynthia (cmo)
is from San Francisco, CA. She updated her bio in May 2009 after an MRi showed a pituitary tumor. She has an inferior sinus sampling set up for early June to see if the tumor is really there and is the cause of all these years of problems. Her Endo is looking at MEN1 also. This bio includes pictures.
New Bio May 29, 2009
Fiona
is from Lydford, UK. She was first diagnosed in 1990 after a year of tests and years of symptoms. About 3 or 4 years ago her symptoms started returning. It appears that she has a recurrence after 18 years.
New Bio May 27, 2009
Naira (nairav323)
is from Montebello, California. She has just been diagnosed with PCOS and is waiting to find out if she has Cushing's.
New Bio May 27, 2009
Evin (Evin)
is from Twin Falls, Idaho. She recently saw a rheumatologist who things she has Cushing's from an adrenal gland tumor. She has many Cushing's symptoms and is trying some self help therapies.
New Bio May 22, 2009
Cindy
is from New Port Richey, Florida. She was first diagnosed with Cushing's disease in January 2002. She had a recurrence and second transphenoidal surgery in February 2006. She has another recurrence and is thinking about a BLA.
New Bio May 21, 2009
Dee (DeeO)
is from Australia. Her daughter has a prolactinoma and Dee is wondering if she could have Cushing's.
New Bio May 21, 2009
Dara (Arkham69)
is from Limerick, Ireland. She is recently diagnosed with Cushing's and also has fibromyalgia.

New and Updated Bios