Cushing's & Cancer

The life and times of a pituitary Cushing's survivor (1987) AND a kidney cancer (Renal Cell Carcinoma) survivor (2006). I must be a Super-Woman...NOT!

Wednesday, January 8, 2014

Cushing’s Patient Awareness Day Invitation

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About Me

Cushing's and kidney cancer (renal cell carcinoma) patient, founder, owner and webmaster of Cushing's Help and Support, web designer, piano teacher and mom.

I am a Cushing's patient who has dealt with Cushing's symptoms since 1983 (or earlier) and the aftereffects of pituitary surgery since 1987.

Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. The site has grown to astronomical numbers. This disease isn't as rare as doctors have told us!

In 2006, I was also diagnosed with kidney cancer (renal cell carcinoma). My left kidney and adrenal gland were removed. Having an adrenal gland removed complicates my post-Cushing's symptoms.

I am not planning to have any more rare and unusual diseases.

My entire bio to date can be found here: http://www.cushings-help.com/maryos_story.htm

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Info from Robin

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Hear Us Roar!

  • Doc Karen, Pituitary Patient and Cushing's Advocate - 12/2/2016
  • Interview with Deborah - 3/30/2016
  • Fabiana, Pituitary Cushing's Recurrence Patient - 10/21/2015
  • Rachel W, Pituitary Interview - 6/3/2015
  • Michelle B (MichelleB), Cyclic Cushing's Interview - 5/13/2015

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  • Simplification of Oral Sodium Loading Test in the Diagnosis of Primary Aldosteronism: 2-day Replacing 3-day Method

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National Institutes of Health (NIH) Podcast

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Pituitary Clinical Trials

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Adrenal Clinical Trials

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Audio Cushing's News

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